Press Release

Press Release

FOR IMMEDIATE RELEASE

Contact: Elleaire Lyons

Email: team@elleairefore.org

Website: www.elleairefore.org

Elleaire Fore Inc. Hosts Second Annual Golf Tournament to Support Hereditary Spastic Paraplegia Research

CORONADO, CA – Elleaire Lyons, Founder of Elleaire Fore Inc., a 501(c)(3) nonprofit organization, is proud to announce the Second Annual Elleaire Fore Golf Tournament—a charitable event dedicated to raising awareness and funds for Hereditary Spastic Paraplegia (HSP). The tournament will take place on Sunday, April 27, 2025, at Coronado Golf Course, with all proceeds benefiting the Spastic Paraplegia Foundation, which supports HSP medical research, treatment development, and rehabilitation advancements.

"As a competitive golfer and advocate for HSP awareness, I am deeply committed to driving change for those affected by this rare neurological condition," said Lyons. "Golf is more than just a game—it’s a platform for unity. My father, an avid golfer, shares this passion with me, and it’s a sport that allows us to play together on an equal playing field."

In honor of Rare Disease Day, Elleaire Fore Inc. is amplifying awareness of HSP and working to bring this condition to the forefront of medical research. Lyons, a Captain of the Coronado High School Girls Golf Varsity Team, competes in tournaments across Southern California and uses her platform to advocate for those impacted by HSP.

In December 2023, she hosted the first Elleaire Fore event, followed by the inaugural Elleaire Fore Golf Tournament in April 2024, which raised nearly $10,000 for HSP research. Due to its success, Elleaire Fore was recognized as the third top contributor to the nationally recognized Spastic Paraplegia Foundation.

"I am thrilled to bring this tournament back for a second year and continue making an impact," Lyons added. "Currently, there is no cure for HSP, but Elleaire Fore is committed to driving for a cure—one swing at a time!"

How to Get Involved

Golfers, sponsors, and supporters are invited to participate in this incredible event. For sponsorship opportunities, tournament registration, or to make a donation, please visit www.elleairefore.org or contact team@elleairefore.org.

About Elleaire Fore Inc.

Elleaire Fore Inc. is a 501(c)(3) nonprofit organization dedicated to raising awareness and funding for Hereditary Spastic Paraplegia through the sport of golf. The foundation’s mission is to support medical research, advance treatment options, and improve rehabilitation opportunities for those affected by HSP.